Our contribution to WP3 is focused on supporting the Delphi exercise and helping assess the psychometric properties of the various candidate instruments for measuring outcomes. For the Delphi, we have advised on the statistical aspects of the survey, including developing a randomisation scheme to reduce respondent burden for people with dementia, created software code to produce informative tabular and graphical summaries of the round 1 survey results for use in Round 2, and, most recently, produced Round 2 summaries to feed into the consensus meeting to select the core outcomes.
With regard to outcome measures, the WP3 team are extracting the available evidence from research papers and reports on how each measure performs in various important respects. These include acceptability to people with dementia and their carers, statistical validity and reliability, and the ability to discriminate between people at different levels of the outcome. The Statistics team are supporting the summarising, combining and interpretation of the available evidence, for the purpose of deciding on the final selection of instruments for the core outcome set.